Patient Support Program | Ask Alia

It looks like you are using an older version of Internet Explorer which is not supported. We advise that you update your browser to the latest version of Microsoft Edge, or consider using other browsers such as Chrome, Firefox or Safari.

This page is intended for Australian patients who have been prescribed FABHALTA®▼ (iptacopan) for paroxysmal nocturnal haemoglobinuria.

The information on this website does not replace the Consumer Medicine Information (CMI). If you have any questions, ask your doctor or care team. replenishEd is a patient support program organised and funded by Novartis.

replenishEd Patient Support Program

Even though paroxysmal nocturnal haemoglobinuria (PNH) is a rare disease (affecting approximately 1–9 people per million of the population) and you might not know anyone with the same condition, you’re not alone.1

Starting a new treatment and managing PNH can have challenges. That’s why the replenishEd Patient Support Program, a patient support program initiated and funded by Novartis, is here for you.

Designed with help from other people living with PNH, the Connected – Stronger Together Patient Support Program provides downloadable resources and highly personalised support. This aims to address your unique needs as you start and continue treatment with FABHALTA®▼ (iptacopan). Joining this optional program allows you to access to different types of support, such as nurse phone calls, emails, or text message reminders to take your medication. You can also access tools to record your symptoms and feelings, as well as read tips on how to manage your well-being and find out more about your condition. The mini self-care guides provide further advice on taking care of your physical and emotional health and managing disruptions to your routine.

Sign up for the replenishEd Patient Support Program
Sign up

What you can access in the Support Program

Strip 1
Strip 2
Strip 3
Strip 4
Strip 5

When you join the replenishEd Patient Support Program, you can choose the areas that you’d like help with:

Strip 6
Strip 7.1
Strip 8
Strip 9
Strip 10
Strip 11
View the terms for the replenishEd Patient Support Program
View

Mini self-care guides

Self care guide

Making time for self-care

Download

A guide to your self-care, including eating and sleeping well, and maintaining good social, physical and emotional health. You can also pick up tips on managing fatigue.

Emotional health guide

Caring for your emotional health

Download

A guide to managing your emotions related to low mood, plus advice on seeking support and asking for help on this. You can find out about activities such as practising mindfulness, and positive self-talk.

Travel Guide

Preparing for travel and other changes in routine

Download

A guide on how to continue taking your medication in the event of your routine being disrupted, like when you’re travelling or for other reasons. You can find tips and tools to help deal with these changes, including visualisation techniques.

Resources & FAQs

Here you can download tools that can help you manage your treatment and condition, as well as find answers to questions you may have about FABHALTA®▼ (iptacopan) or PNH. There is also information on support groups and websites.

Find out more

Reference

  1. PNH Support. What is PNH? Available at: https://pnhuk.org/what-is-pnh/. [Accessed October 2024].
 
AUS | June 2025 | AU-27923 
 
▼ There is additional monitoring in place for FABHALTA® to help quickly identify new side effects. If you experience any side effects, talk to your doctor, nurse or pharmacist/other healthcare professional. This includes any possible side effects not listed in the Consumer Medicine Information (CMI) available from your pharmacist or doctor, or from novartis.com.au. If you have any questions or concerns about FABHALTA®, speak with a healthcare professional. 
test alt